Events

Sponsored Presentations
2016-2017 event Series
CDUHR AIDS Seminar – Andrew Cleek – September 13, 2016
Tuesday, September 13, 2016, 10:30 am-11:30 am
Location: 433 First Avenue, Room 760
Presented by: Andrew Cleek, PsyD
Presentation title: NYS Medicaid Reform: How Will Medicaid Transformation Affect Access & Quality to Care for Patients with HIV, HCV, and Drug Dependence

New York State is undergoing the largest change in the way it pays for public sector health care in decades.  The presenters will discuss how the introduction of Health Homes, Delivery System Reform Incentive Payment (DSRIP), the Behavioral Health Managed Care Transition, and Value Based Payments are transforming care for individuals with HIV, HCV and behavioral health conditions.

CleekAndrew Cleek

Dr. Andrew Cleek oversees community partnerships and co-directs both New York State’s Community and Managed Care Technical Assistance Centers (CTAC and MCTAC) in his role as the McSilver Institute’s Executive Officer. Dr. Cleek was the founding director of the Urban Institute for Behavioral Health (UIBH), which was a unique partnership of behavioral health providers dedicated to the implementation of evidence-based practices, integrated primary and behavioral healthcare, and system transformation. Under Dr. Cleek’s leadership, UIBH became an incubator in which pilot projects were developed and brought to scale across New York City and State. Dr. Cleek regularly presents at local and national conferences and is the co-author of widely-used curricula including “Wellness Self-Management” and “Knowledge Empowers You (KEY).” Dr. Cleek also holds an appointment as a Research Assistant Professor at the New York University School of Medicine.

 

CDUHR AIDS Seminar – Lisa Bowleg – October 11, 2016
Tuesday, October 11, 2016, 10:30 am-11:30 am
Location: 433 First Avenue, Room 760
Presented by: Lisa Bowleg, PhD
Presentation title: It’s All in the Mix: How Mixed Methods Enhance (and Complicate) HIV Prevention Research

Mixed methods research is a distinct methodological approach that capitalizes on the advantages of qualitative and quantitative methods in a single study. Although interest in mixed methods is flourishing in the behavioral and social sciences, researchers interested in conducting mixed methods studies face numerous challenges—the lack of formal training in qualitative and mixed methods research, chief among them. Using examples from mixed methods behavioral HIV prevention research with Black heterosexual men as a foundation, this presentation will: (1) provide an overview of mixed methods and some mixed methods designs; (2) consider why, when and how researchers might use mixed methods; (3) emphasize “the mix” and its challenges; and (4) highlight how to build mixed methods knowledge and capacity.

Lisa Bowleg, Ph.D., Associate Professor, Applied Social Psychology Program, Department of Psychology, The George Washington University

Lisa Bowleg

Dr. Bowleg’s research focuses on: (1) the effects of individual-level and social-structural factors (e.g., unemployment, incarceration, racial discrimination) and resilience on Black men’s HIV sexual risk and protective behaviors; (2) intersectionality; and (3) experiences of intersectionality-related stress and resilience in Black, lesbian, gay, bisexual and transgender people.  She is the joint-Principal Investigator (PI) with Dr. Anita Raj, UCSD of a 2012 NIH/NIMH-funded RO1 (1 R01 MH096657 – 01) to evaluate MEN Count, a housing and employment case management HIV prevention intervention for Black heterosexual men. Dr. Bowleg is also the PI of MENHOOD, a 2012 NIH/NIMH-funded R01 (1 R01 HD074451-01) to test a conceptual model of individual and neighborhood-level social-structural stressors and resilience on Black men’s sexual HIV risk and protective behaviors.  REPRESENT, her 2007 NIH/NICHD-funded R01 (1 R01 HD054319-01), examined the effects of masculinity ideologies, sexual scripts and social-structural factors on Black heterosexual men’s sexual risk behaviors.  Dr. Bowleg is a member of the DC Developmental Center for AIDS Research (CFAR) and an editorial board member of the Journal of Mixed Methods, Journal of Sex Research, Cultural Diversity and Minority Psychology, and LGBT Health. She is the recipient of the 2014 Psychology and AIDS Distinguished Leadership Award from the American Psychological Association.

Methods Core – Charles Cleland – Introduction to R – October 27, 2016
Thursday, October 27, 2016, 10:00 am-12:00 pm
Location: 433 First Avenue, Room 760
Presented by: Charles Cleland, PhD
Presentation title: An Introduction to R: Get Started and See the Possibilities

An introduction to R, a mature, open-source platform for statistical computing. The unique advantages of R will be described, and essentials of data import & export, management, visualization, and common statistical analysis will be demonstrated.

Cleland-276x303-new

Charles Cleland is a quantitative psychologist and biostatistician with more than ten years of experience in the field of public health research. His methodological interests include longitudinal data analysis, meta­-analysis, respondent­ driven sampling, and multilevel modeling. His substantive research interests include health disparities, particularly in the areas of substance use and infectious disease.

CDUHR AIDS Seminar – David Perlman – November 8, 2016
Tuesday, November 8, 2016, 10:30 am-11:30 am
Location: 433 First Avenue, Room 760
Presented by: David Perlman, MD
Presentation title: Conceptualizing Care Continua: Lessons from HIV, Hepatitis C, and Tuberculosis -- Implications for the Development of Improved Care and Prevention Continua

The continuum construct is now a formal part of public health evaluation systems for HIV, and is increasingly used in public health and the medical literature. Issues with the comparability and optimal design of care continuum models have been raised, their methodologic and theoretic underpinnings, scope of focus, and modes of analysis  have been under-addressed, including their use to assess intervention impact.  Lessons learned from the application of continuum models to HIV and other conditions can inform the development of more comprehensive, informative and standardized care and prevention continua for their use as clinical program, public health and research tools.

 

Perlman-276x303David Perlman

David Perlman has over 20 years’ experience in HIV, HCV, TB and STIs and remains active as a clinician in these areas. He has served as principal investigator on multi-center trials within NIAID’s AIDS Clinical Trials group, and on R01 grants from NIDA. He has served on NIH study sections, CDC consensus panels, and committees within the ACTG, the NYS DOH AIDS Institute, and the NYC DOMH. Dr. Perlman’s earlier work focused on studies of the epidemiology of tuberculosis among drug users, and on health care delivery models and behavioral and structural interventions to facilitate adherence to the TB and HIV/TB care continuum. Dr. Perlman’s recent work has focused on studies of barriers and facilitators of HIV and HCV testing and care among racial and ethnic minorities, high risk heterosexuals, and people who use drugs, and more broadly on studies of strategies to improve HIV and HIV/HCV care continua and prevention programming for these populations.

CDUHR Mini-Conference – Structural Variables – December 13, 2016
Tuesday, December 13, 2016, 9:00 am-1:00 pm
Location: 133 E 13th Street, 2nd Floor, Room A
Presented by: David Perlman, Mark Hatzenbuehler & Hannah Cooper; Charles Cleland (Panelist)
Presentation title: Mini-Conference on Structural Variables

The health of individuals and populations is influenced by a multitude of factors, at the individual level and at other levels. Yet knowing this, and despite calls for more attention to social determinants of health, many analyses nonetheless primarily focus on individual-level factors, and fail to formally examine the context, place and a wide range of measured and measurable place-related structural factors. This mini-conference, through special presentations and a facilitated audience and panel discussion, providee an introduction to the rationale for the study of structural variables, their relation to health outcomes and to intervention development, consider relevant data sources and analytic considerations, and highlight two presentations of structural-level analyses relevant to the work of CDUHR and other investigators. The intent of the program is to inform current and future work by CDUHR-affiliated and other investigators.

Download slides of presentations from the featured speakers.

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CDUHR AIDS Seminar – Brandon Marshall – January 10, 2017
Tuesday, January 10, 2017, 10:30 am-11:30 am
Location: 433 First Avenue, Room 760
Presented by: Brandon DL Marshall, PhD
Presentation title: Using Microsimulation to Evaluate HIV Prevention and Treatment Strategies that Reduce Disparities and Maximize Impact

marshallbdlDr. Marshall is the Manning Assistant Professor of Epidemiology at Brown University. His research interests focus on substance use epidemiology and examining the social, environmental, and structural determinants of health of drug-using populations. His work seeks to inform public health and policy interventions that improve the health of drug users. He is also interested in applying complex systems methods to examine factors that perpetuate HIV transmission in drug-using populations.

 

Adolescent Interest Group Presentation – February 2, 2017
Thursday, February 2, 2017, 10:00 am-12:30 pm
Location: 433 First Avenue, Room 760
Presented by: Sarah Feldstein Ewing, PhD & Emily Merz, PhD
Presentation title: Developmental Cognitive Neuroscience of Adolescent Mental Health and Risk-Taking Behaviors: Implications for Assessment and Intervention

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Sarah Feldstein Ewing, PhD, will discuss the neural and cognitive factors that influence adolescents’ decision-making around sex and their behaviorally co-occurring risk behaviors including substance use.

Dr. Feldstein Ewing is Professor in Child and Adolescent Psychiatry at OHSU and a licensed clinical child psychologist who utilizes a variety of evidence-based approaches to prevent and intervene with adolescent health risk behavior, including alcohol use, cannabis use, and HIV/AIDS risk behavior. She has developed a highly-innovative NIH-funded line of translational research evaluating the connection between basic biological mechanisms (e.g., functional brain activation, brain structure, genetic factors) and youth health risk behavior (e.g., clinical symptoms, HIV risk behaviors, treatment outcomes). She has conducted several NIH-funded, large-scale clinical trials with at-risk adolescents to evaluate the developmental fit and treatment outcomes for motivational interviewing, behavioral skills training, cognitive behavioral approaches, mindfulness and contingency management.

merzEmily Merz, PhD, will discuss NIMH’s Research Domain Criteria (RDoC) initiative and its implications for studying child and adolescent health behaviors with illustrations from her ongoing research. RDoC is a translational research framework designed to integrate many levels of information (e.g., genomics, neural circuits, physiology, self-report) to lead to a more comprehensive understanding of the dimensions of functioning underlying the full range of human behavior and to inform future therapeutic and preventive interventions.

Dr. Emily Merz is a postdoctoral fellow at the Columbia University Medical Center, working primarily with Dr. Kimberly Noble. She attained her PhD in clinical and developmental psychology from the University of Pittsburgh in August 2012. Her work is focused on examining the neurobiological mechanisms through which early adversity, particularly poverty, alters social-emotional development, leading to an increased risk for psychopathology in children and adolescents.

Recommended Readings

Feldstein Ewing SW, Ryman SG, Gillman AS, Weiland BJ, Thayer RE, Bryan AD (2016). Developmental cognitive neuroscience of adolescent sexual risk and alcohol use. AIDS and Behavior, 20 (Suppl 1), S97-S108. doi: 10.1007/s10461-015-1155-2.

Feldstein Ewing SW, Tapert SF, Molina BSG (2016). Uniting adolescent neuroimaging and treatment research: Recommendations in pursuit of improved integration. Neuroscience and Biobehavioral Reviews, 62, 109-114. doi: 10.1016/j.neubiorev.2015.12.011.

Goldstein AB, Morris SE. (2016). Reconceptualizing prevention: Commentary on “conducting psychopathology prevention research in the RDoC era”. Clinical Psychology: Science and Practice, 23 (1), 105-108. doi: 10.1111/cpsp.12143.

CDUHR IDET Core Presentation – Gkikas Magiorkinis – February 7, 2017
Tuesday, February 7, 2017, 10:30 am-12:00 pm
Location: 433 First Avenue, Room 760
Presented by: Gkikas Magiorkinis, MD, Msc, PhD, Path
Presentation title: Evolutionary Epidemiology of Viral Infections and Applications to Public Health Research

This seminar will provide an outline and describe basic concepts on how evolutionary epidemiology works by exploiting the phenomenon of viral evolution with the methods of phylogenetics, phylodynamics and phylogeography. It will also show how modern technologies of reading DNA sequences have revolutionised the field of viral genomics. Finally, it will provide practical examples of these methods with public health applications.

magiorkinisGkikas Magiorkinis

Gkikas Magiorkinis is a Senior Clinical Fellow and a University Research Lecturer at the University of Oxford, and Consultant in Medical Virology in Public Health England, Colindale. Dr. Magiokinis has published more than 50 papers and focuses on translating viral evolution in biomedical applications. Most notably his research has revealed the hidden dynamics on how HCV and HIV spread around the world, as well as among PWIDs. Dr. Magiokinis is funded by the Medical Research Council to study the pathophysiology of ancient retroviral infections of the human germline.

CDUHR AIDS Seminar – Julie Netherland – February 14, 2017
Tuesday, February 14, 2017, 10:30 am-11:30 am
Location: 433 First Avenue, Room 760
Presented by: Julie Netherland, PhD
Presentation title: Bridging the Research Policy Divide: The Role of Researchers in Drug Policy Reform

The divide between research and policy can be vast, especially for a controversial issue, such as drugs, where stigma and ideology often trump science. But now more than ever, solid evidence is needed to guide the nation’s drug policies. This talk offers a behind-the-scenes look at how drug policies are actually made, identifies some of the challenges for researchers in doing policy advocacy, and provides concrete tools for researchers to effectively engage in transforming policies.

netherlandJulie Netherland

Julie Netherland, PhD, is the Director of the Office of Academic Engagement for the Drug Policy Alliance. In that role, she advances drug policy reform by supporting scholars in doing advocacy, convening experts from a range of disciplines to inform the field, and strengthening DPA’s use of research and scholarship in developing and advancing its policy positions.

Dr. Netherland previously served as the Deputy State Director of DPA’s New York Policy Office, where she was instrumental in passing two laws to legalize the use of medical marijuana in New York and advancing a number of harm reduction and public health approaches to drug policy. Dr. Netherland is the editor of Critical Perspectives on Addiction (Emerald Press, 2012). She holds a PhD in sociology from the City University of New York Graduate Center, a Masters in Social Work from Boston University, and B.A. from Bryn Mawr College. She teaches at John Jay College of Criminal Justice and is a social work field instructor for Columbia University.

CDUHR Mini-Conference – mHealth – April 4, 2017
Tuesday, April 4, 2017, 8:30 am-2:00 pm
Location: NYU Kimmel Center - 60 Washington Square South, Room 905/907
Presented by: Santosh Kumar, PhD, Inbal (Billie) Nahum-Shani, PhD, Tom Kirchner, PhD, David Kotz, PhD
Presentation title: Mini-Conference on mHealth

kumarSantosh Kumar, PhD – University of Memphis
Center of Excellence for Mobile Sensor Data-to-Knowledge (MD2K)

Santosh Kumar is a Professor and Director of the NIH Center for Excellence for Mobile Sensor Data to Knowledge (MD2K) at the University of Memphis. With his team, Dr. Kumar collected real-life mobile sensor data from human volunteers for 25,000+ hours in their natural environments and from these measurements have developed robust models to detect several important biomarkers which include estimating stress and craving (from physiological sensor data), and detecting smoking (from smartwatch and respiration data), cocaine use (from heart rate data), and conversation (from respiration data). His most recent work is aimed towards discovering patterns in time series of biomarkers to determine triggers for delivering just-in-time mobile interventions.

 

nahum-shaniInbal (Billie) Nahum-Shaniz, PhD – University of Michigan
From Adaptive to Just-In-Time Adaptive Interventions in Mobile Health: Conceptual and Methodological Considerations

Billie Nahum-Shani is an Assistant Professor at the Institute for Social Research and a researcher on the Mobile Sensor Data to Knowledge (MD2K) team at the University of Michigan. Her research integrates Occupational Health Psychology and Quantitative Psychology to (a) develop technology-based supportive interventions for reducing stress and preventing problem behaviors among young adults and employed individuals; and (b) building adaptive interventions that are delivered via mobile devices and that provide support in real-time to people as they go about their daily lives (Just-in-Time Adaptive Interventions).

 

Kirchner-276x303Tom Kirchner, PhD – New York University
Ecological Momentary Public Health Research

Tom Kirchner is a Clinical Associate Professor at NYU’s College of Global Public Health and founding director of the NYU mobile health (“mHealth”) research initiative.  Dr. Kirchner is interested in the analysis and graphical representation of “intensive” longitudinal and geographic data, including novel methodologies that link individual behavior to the real-time context in which it occurs. This includes public health ramifications of marijuana legalization and the way tobacco-use behaviors are influenced in real-time by socio-contextual factors in real world settings.

 

kotzDavid Kotz, PhD – Dartmouth College
Security and Privacy Issues in Mobile Health

David Kotz is a Professor in the Department of Computer Science at Dartmouth College and Director of the Core on Emerging Technologies and Data Analytics at the Center for Technology and Behavioral Health at the Geisel School of Medicine at Dartmouth. In 2013 he was appointed to the US Healthcare IT Policy Committee. His research interests include security and privacy, pervasive computing for healthcare, and wireless networks. His leads a five-university team investigating Trustworthy Health & Wellness (THaW) technology funded by the National Science Foundation.

CDUHR AIDS Seminar – Joshua D. Lee – April 11, 2017
Tuesday, April 11, 2017, 10:30 am-11:30 am
Location: Location: 433 First Avenue, Room 760
Presented by: Joshua D. Lee, MD, MSc - NYU School of Medicine
Presentation title: Low Threshold Opioid Pharmacotherapy Treatments in Criminal Justice and Primary Care Populations

leejd-276x303Joshua D. Lee is an Associate Professor of Population Health and Medicine/General Internal Medicine and Clinical Innovation at the NYU School of Medicine. He is a clinician researcher focused on addiction pharmacotherapies, and is Director of the NYU ABAM Fellowship in Addiction Medicine. His research models the use of addiction pharmacotherapies in primary care and criminal justice populations.  He has conducted multiple NIH and other clinical trials examining the use of extended-release naltrexone and buprenorphine opioid treatments in outpatient criminal justice involved-adults, in soon-to-be released jail inmates, and in community detox settings. Research on extended-release naltrexone for alcohol treatment has focused on primary care medical management. Dr. Lee graduated Princeton University (AB), the University of Tennessee School of Medicine (MD), and Weill Cornell Graduate School of Medical Sciences (MSc).  He completed a residency and chief residency in Primary Care Internal Medicine at NYU/Bellevue Hospital Center and is certified in Addiction Medicine.  He is currently an attending physician at Bellevue Hospital and in the New York City jails.

Pilot Projects and Mentoring Core Reception – May 3, 2017
Wednesday, May 3, 2017, 10:00 am-1:00 pm
Location: 433 First Avenue, Room 760
Presented by: Pilot Project Recipients: Peter Navario, Joseph Palamar, Marta Concheiro-Guisan, Caroline Dorsen, Dustin Duncan, Alexis Jemal, Janie Simmons
Presentation title: Pilot Projects and Mentoring Core Reception

Navario-276x303Peter Navario, PhD, MPH

Conflict and HIV in Ukraine: The Effect of Displacement of HIV-Related Sex and Substance Use Risk Behaviors among Ukrainian Young Adults

 

 

Palamar-276-303Joseph Palamar, PhD, MPH

Use of Psychoactive Drugs and Sexual Risk Behavior Among Nightclub and Festival Attendees

 

 

Concheiro-Guisan-276x303Marta Concheiro-Guisan, PhD

K2 Impact in Antiretroviral Therapy Discontinuation

 

 

 

Dorsen-276x303Caroline Dorsen, PhD, FNP-BC

Ethnographic Approach to Understanding the Subculture of Plant Medicine Users

 

 

Duncan-276x303Dustin Duncan, ScD

Neighborhood Activity Space, Drugs and HIV Risk Among Black MSM in the Deep South

 

 

Jemal-276X303Alexis Jemal, PhD, JD, MSW

Formative Research for Critical Consciousness Intervention Development

 

 

Simmons-276x303Janie Simmons, EdD

GetNaloxoneNew.org Dissemination and Implementation Pilot

CDUHR AIDS Seminar – Yih-Ing Hser – May 9, 2017
Tuesday, May 9, 2017, 10:30 am-11:30 am
Location: 433 First Avenue, Room 760
Presented by: Yih-Ing Hser, PhD
Presentation title: Long-term Course of Opioid Addiction

Studies on the long-term course of opioid use can inform the long-term management of patients with opioid use disorder.  Long-term follow up data from several cohorts of opioid users will be reviewed, highlighting patterns of opioid use and predictors, as well longitudinal modeling approaches applied.

hser-2017Yih-Ing Hser

Dr. Yih-Ing Hser is Professor-in-Residence in the Department of Psychiatry and Behavioral Sciences at the UCLA Integrated Substance Abuse Programs and the Director of the Center for Advancing Longitudinal Drug Abuse Research. As a trained quantitative psychologist, she has extensive experience in health services research, treatment evaluation, and long-term follow-up research, derived from her prior and ongoing research projects.  She has been conducting research in the field of substance abuse and its treatment since 1980 and has extensive experience in research design and advanced statistical techniques applied to substance abuse data.  In addition to gender-related issues in substance abuse and treatment, Dr. Hser has published in the areas of treatment evaluation, epidemiology, natural history of drug addiction, and innovative statistical modeling development and application.

CDUHR AIDS Seminar – Johanne Morne – June 13, 2017
Tuesday, June 13, 2017, 10:30 am-11:30 am
Location: 433 First Avenue, Room 760
Presented by: Johanne Morne, MS
Presentation title: Ending the Epidemic in New York State: Ending Epidemics, Fighting Stigma, Promoting Health

Since the onset of the AIDS epidemic, New York State has been leading the way with the development of comprehensive prevention, care and support systems. In June 2014, Governor Cuomo announced a three-point plan to end AIDS as an epidemic in New York State with the goal of decreasing the annual number of estimated new HIV infections to 750 by the end of 2020; achieving the state’s first ever decrease in HIV prevalence. This presentation will cover several significant achievements to date, as well as highlight areas in need of continued prioritization to ensure we meet our significant goals.

morne-photoJohanne Morne, MS

Johanne Morne is the director of the New York State Health Department’s AIDS Institute. The AIDS Institute is a $500 million public health program with a staff of over 400. Ms. Morne has been with the AIDS Institute for ten years.

Prior to joining the State Health Department, Ms. Morne served as quality manager of psychiatry and HIV services at Albany Medical Center Hospital and as the director of community-based HIV services at Whitney M. Young, Jr. Health Services – a Federally Qualified Health Center. Ms. Morne’s professional and clinical experience is in public health and behavioral health, particularly within communities of color.

CDUHR Methods Presenation – Jason Fletcher – June 28, 2017
Wednesday, June 28, 2017, 10:00 am-12:00 pm
Location: 433 First Avenue, Room 760
Presented by: Jason Fletcher, PhD
Presentation title: Of MICE* and Missing Data

*Multiple Imputation with Chained Equations

This session will describe issues associated with missing data, including diagnosing missing data mechanisms and analysis strategies for dealing with incomplete data. An example will demonstrate how to summarize missing data, replace it using multiple imputation (MICE), and analyze the imputed data, using SAS, SPSS, and Stata.

Jason FletcherJason Fletcher 

Jason Fletcher is a quantitative researcher with more than 15 years’ experience conducting evaluation research in the fields of community and public health. His methodological interests include survey research, item-response theory, differential item analysis, multilevel modeling and analysis of longitudinal data. His substantive interests include health disparities and chronic disease.

CDUHR AIDS Seminar – Arthur Caplan – December 12, 2017 – RESCHEDULED
Tuesday, December 12, 2017, 10:30 am-11:30 am
Location: 433 First Avenue
Presented by: Arthur Caplan, PhD
Presentation title: Expanded Access, Ethics and Compassionate Use - From Drugs for HIV to Personalized Medicine

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Arthur Caplan

Arthur Caplan is the Drs. William F and Virginia Connolly Mitty Professor and founding head of the Division of Bioethics at New York University Langone Medical Center. He is the co-founder and Dean of Research of the NYU Sports and Society Program and the head of the ethics program in the Global Institute for Public Health at NYU.

Dr. Caplan is the author or editor of thirty-five books and over 700 papers in peer reviewed journals.  He is a regular commentator on bioethics and health care issues for WebMD/Medscape, for WGBH radio in Boston and WMNF public radio in Tampa.  He appears frequently as a guest and commentator on various other national and international media outlets.

Dr. Caplan is the recipient of many awards and honors including:

  • McGovern Medal of the American Medical Writers Association
  • Franklin Award from the City of Philadelphia
  • In 2001, Person of the Year, USA Today
  • In 2008, one of the ten most influential people in science by Discover magazine
  • One of the fifty most influential people in American health care by Modern Health Care magazine
  • One of the ten most influential people in America in biotechnology by the National Journal
  • One of the ten most influential people in the ethics of biotechnology by the editors of Nature Biotechnology
  • One of the 100 most influential people in biotechnology by Scientific American magazine
  • In 2011, Patricia Price Browne Prize in Biomedical Ethics
  • In 2014, the Public Service Award from the National Science Foundation/National Science Board, which honors individuals and groups that have made substantial contributions to increasing public understanding of science and engineering in the United States
  • In 2016, the National Organization for Rare Disorders (NORD) honored him with their ‘Rare Impact Award’