ResearchPublications

Manifestations and lived experiences of structural racism for racial and ethnic minority communities affected by HIV across the United States
Abstract

OBJECTIVE: To elucidate some of the manifestations of structural racism as a root cause of racialized inequities in HIV in the context of COVID-19, centered through the lens of community members with lived experiences.

METHODS: We partnered with eight community-based organizations to conduct focus group discussions structured around COVID-19 and HIV-related experiences. We utilized inductive coding and thematic analysis.

RESULTS: We conducted 10 focus group discussions (98 participants) across the United States between February and May 2023; 65% were ages 18–39, over 90% identified as Black, 39% were female, and 66% were cisgender. First, participants emphasized that structural racism intersects with other systems of oppression. Second, three main themes emerged as manifestations of structural racism: (1) lack of representation in state and federal decision-making levels, (2) differential access to resources, and (3) intergenerational mistrust and trauma.

CONCLUSION: The intersecting impact of the HIV epidemic and COVID-19 pandemic underscores the pervasive effects of structural racism that manifests in the United States.

HEALTH EQUITY IMPLICATIONS: More than ever, researchers must champion the experiences and needs of racial and ethnic minority communities to affect structural change.

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Full citation:
Muno BA, Haris M, Zegeye A, Behailu R, Hassan S, Islam JY, Smith MD, Smith MD, Nnaji C, Barnes-Balenciaga J, Miller M, Sawyer S, McCullough D, Mares L, Burley U, Bijole P, Haddock IL, Hall B, Warren M, Duncan DT, Wallace-Marc Jacobs SE, Camacho-Rivera M, Jaiswal J, Patel RC (2025).
Manifestations and lived experiences of structural racism for racial and ethnic minority communities affected by HIV across the United States
Health Equity, 9 (1), 474-490. doi: 10.1177/24731242251375878.